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We believe by sharing their stories, HCC patients help decrease the stigma of a liver cancer diagnosis.
LOS ANGELES, CA, October 25, 2016 /24-7PressRelease/ -- Blue Faery: The Adrienne Wilson Liver Cancer Association has joined a special partnership of similar organizations across North America, Asia and Europe to ask hundreds of men and women with primary liver cancer (HCC) to share their experiences by responding to the first international survey of people living with HCC.
The anonymous survey is available on-line and patients can access it on their personal computers at HCC Voices. Data privacy will be assured at all times. The survey will be available on the web until December 31, 2016. Patients who respond to the survey will receive a personal copy of the report, which will allow them to compare their observations with those of others who participated in the survey.
"We understand each patient's personal fight against liver cancer is their first priority. However, each patient is also one among tens of thousands of people who are fighting a similar battle every day, in every country of the world. We believe by sharing their stories, HCC patients help decrease the stigma of a liver cancer diagnosis," said Blue Faery President and Founder Andrea Wilson.
According to NCI, from 1975 - 2012, death rates for all common cancers (e.g., breast, prostate, lung) declined in the United States with one exception: liver cancer. In fact, liver cancer is the sixth most common cancer diagnosed each year and the second leading cause of cancer deaths worldwide.
In addition to Blue Faery, many other liver cancer groups are participating in the survey including the American Liver Foundation, British Liver Trust, Canadian Liver Foundation, European Liver Patients' Association, Taiwan Liver Cancer Association and a number of liver cancer treatment units in major medical centers around the world. The survey was developed for these organizations by the research company, Strategic Sight, which will analyze the results in collaboration with the Medical Technology Research Group of the London School of Economics, with an unrestricted educational grant from Sirtex.
The survey results will be available in 2017 in the form of a report from the London School of Economics and the participating liver cancer groups. The survey findings will be available to liver research organizations, scientific journals and the media.
Founded in 2002, Blue Faery is the only nonprofit organization in the United States solely devoted to fighting HCC. The mission of Blue Faery is to prevent, treat and cure primary liver cancer, specifically Hepatocellular Carcinoma (HCC), through research, education and advocacy. Andrea Wilson started Blue Faery in honor of her sister Adrienne, who died of HCC only 145 days after her diagnosis. Andrea raised Adrienne from the time she was eight years old until her death from liver cancer at age 15.
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