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Valley Girl is Making a Statement, for Hope

Bringing Home a Cure for Rett Syndrome with Love and Fashion
    PHOENIX, AZ, November 29, 2013 /24-7PressRelease/ -- Meet Brianna; a bright and energetic 9 year old girl who is on a mission. Brianna's mission is to ultimately make a difference in the lives of more than 350,000 girls and young women around the world who, like her closest cousin Sophia, suffer from a neurodevelopmental disorder called Rett Syndrome. Sophia and Brianna are the same age and did everything together since the day they were born (play dates, zoo trips, swimming, etc.). At around 16 months Sophia began to change. She started regressing and by age 2 Sophia was diagnosed with Autism. It wasn't until age 6 that Sophia was more accurately diagnosed with Rett Syndrome (the most severe and terminal form of Autism). Brianna wishes she and Sophia could do things like take art classes together, laugh and make jokes, and read and tell stories together, but, because of Sophia's affliction, they cannot. Brianna is determined to get her cousin back so they can do all of these things together. So much so that she is working very hard to raise money for a cure for Rett Syndrome.

3 years ago, Sophia's parents started a fundraising event called Second Chance for Sophia and Friends (http://www.rsrt.org/second-chance) to raise money to help fund the cure for Rett Syndrome. Geneticists have successfully reversed Rett Syndrome in mice and the researchers are very confident that the same process will be effective with humans. The next course of action to fulfill these promising treatments is for scientists to execute full scale clinical trials. Of course, all it takes is money; about 75 million dollars to be exact. While raising over $200,000 in just 3 years, Sophia's family has made an unrelenting commitment to raise awareness about Rett Syndrome and the hope for a cure. Inspired by this drive and her love for Sophia, Brianna decided that she wasn't going to stand on the sidelines; she would join the fight and help raise as much money as she could. With creative passion in hand, she came up with a plan to sell fun and fashionable headbands and named the fundraiser "Cool Bands for a Cure". In just 2 months, Brianna has raised $700 and her goal is to send at least $1,500 to Rett Syndrome Research Trust (http://www.rsrt.org/about-rsrt) by the end of December.

Visit https://www.facebook.com/CoolBandsforaCure for more information


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Contact Information


Deena Hardin
Cool Bands for a Cure

Tempe, Arizona
United States
Voice: 602.799.9919
E-Mail: Email Us Here
Website: Visit Our Website

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