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This community is vibrant, engaging, funny, educating, and empowering. We invite the greater community to join us," said Dr. Lakiea Bailey, Executive Director of the Sickle Cell Community Consortium
BURBANK, CA, June 08, 2023 /24-7PressRelease/ -- Cayenne Wellness Center and Children's Foundation (Cayenne Wellness Center) and the Sickle Cell Community Consortium are excited to announce the 4th Annual World Sickle Cell Day 2023 24-Hour Sickle Cell-A-Thon, taking place on June 19, 2023. The event aims to raise awareness for sickle cell disease, a genetic blood disorder that affects millions of people worldwide.
The Sickle Cell-A-Thon is a virtual event that will feature a 24-hour live stream of educational sessions, panel discussions, and entertainment. The event will be hosted by sickle cell advocates, healthcare professionals, and celebrities who will share their experiences and knowledge about sickle cell disease. The event will also feature sickle cell organizations worldwide.
"We are thrilled to partner with the Sickle Cell Community Consortium to host the 4th Annual World Sickle Cell Day 2023 24-Hour Sickle Cell-A-Thon," said Dr. Carolyn Rowley, Founder and Executive Director of Cayenne Wellness Center. "This event is an opportunity to raise global awareness about sickle cell disease, sickle cell trait, and to provide education and support for individuals and families affected by this condition."
Sickle cell disease is a life-long chronic condition that affects the red blood cells, causing them to break down and become misshapen. This can lead to a long range of complications, including severe pain, organ damage, and stroke. Researchers are currently working on curative therapies for sickle cell disease, and treatment options are limited.
"The Sickle Cell A Thon is a wonderful opportunity to learn about sickle cell disease and to hear from sickle cell patients and caregivers around the world. This community is vibrant, engaging, funny, educating, and empowering. We invite the greater community to join us to meet this wonderful group," said Dr. Lakiea Bailey, Executive Director of the Sickle Cell Community Consortium.
Registration for the 4th Annual World Sickle Cell Day 2023 24-Hour Sickle Cell-A-Thon is now open. For more information and to register, visit https://tinyurl.com/wscd23.
About Cayenne Wellness Center:
Cayenne Wellness Center and Children's Center 501(c)(3) non-profit formed in 2000 works to increase the quality of life for individuals diagnosed with sickle cell disease in California by ensuring expert, unbiased, and comprehensive care. Based in Burbank, California, Cayenne Wellness Center provides education and awareness for health care providers, patients, and the general public, maintains a grassroots network of individuals and institutions, and conducts advocacy for people with sickle cell disease. Follow Cayenne Wellness Center at CayenneWellness.org, facebook.com/CayenneWellness, Instagram at instagram.com/CayenneWellness, Twitter at (@CayenneWellness).
About the Sickle Cell Community Consortium:
The Sickle Cell Community Consortium is a 501(c)(3) non-profit formed in 2014 to "harness and amplify the power of the patient voice." The Consortium includes sickle cell community-based organizations (CBOs), patient and caregiver advocates, community partners, and medical and research advisers. Donations to the Sickle Cell Community Consortium help define problems and gaps in the sickle cell community, identify strategies to address those needs and gaps and determine the CBO, Community, and Corporate partnerships best equipped to implement those strategies to achieve significant and sustainable change. To learn more, visit SickleCellConsortium.org. Follow The Sickle Cell Community Consortium at facebook.com/SCCConsortium, Instagram at instagram.com/SCCConsortium, Twitter at (@SCCConsortium), and the VitaminSC3 Podcast.
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